Poor governance impedes the provision of equitable and cost–effective health care in many low– and middle–income countries (LMICs). Although systemic problems such as corruption and inefficiency have been characterized as intractable, “good governance” interventions that promote transparency, accountability and public participation have yielded encouraging results. Mobile phones and other Information and Communication Technologies (ICTs) are beginning to play a role in these interventions, but little is known about their use and effects in the context of LMIC health care.
Multi–stage scoping review: Research questions and scope were refined through a landscape scan of relevant implementation activities and by analyzing related concepts in the literature. Relevant studies were identified through iterative Internet searches (Google, Google Scholar), a systematic search of academic databases (PubMed, Web of Science), social media crowdsourcing (targeted LinkedIn and Twitter appeals) and reading reference lists and websites of relevant organizations. Parallel expert interviews helped to verify concepts and emerging findings and identified additional studies for inclusion. Results were charted, analyzed thematically and summarized.
We identified 34 articles from a wide range of disciplines and sectors, including 17 published research articles and 17 grey literature reports. Analysis of these articles revealed 15 distinct ways of using ICTs for good governance activities in LMIC health care. These use cases clustered into four conceptual categories: 1) gathering and verifying information on services to improve transparency and auditability 2) aggregating and visualizing data to aid communication and decision making 3) mobilizing citizens in reporting poor practices to improve accountability and quality and 4) automating and auditing processes to prevent fraud. Despite a considerable amount of implementation activity, we identified little formal evaluative research.
Innovative digital approaches are increasingly being used to facilitate good governance in the health sectors of LMICs but evidence of their effectiveness is still limited. More empirical studies are needed to measure concrete impacts, document mechanisms of action, and elucidate the political and sociotechnical dynamics that make designing and implementing ICTs for good governance so complex. Many digital good governance interventions are driven by an assumption that transparency alone will effect change; however responsive feedback mechanisms are also likely to be necessary.
Worldwide, poor health sector governance results in inefficiency, waste, error and fraud, compromising the integrity of health services and the equitable delivery of patient care. The problem is particularly acute in low– and middle–income countries (LMICs), where corruption in medicine has been referred to as an “open secret” [
The complex organizational, political and socio–cultural dynamics associated with poor governance can seem intractable, but discrete and replicable interventions for tackling these problems have yielded encouraging results. For example, a randomized trial of Community Score Cards in Uganda was associated with substantial decreases in provider absenteeism and wait times, a 20% rise in outpatient service utilization, and a 33% reduction in child mortality in just one year, at a cost of only US$ 3 per household [
With the spread of the Internet, mobile phones and social media, approaches toward encouraging good governance are taking new digital forms. Some are emerging organically through social movements aimed at effecting change through group pressure, while others have been intentionally designed to enable citizens or co–workers to report poor practices directly to health organizations or to an oversight body. Within the global health and development community such approaches are becoming well established if not yet widespread. For example, the anti–corruption platform ipaidabribe.com, developed by the not–for–profit organization Janaagraha, is now widely used across India [
Reviewing such interventions is challenging because researchers use “governance” and related terms in various ways, as outlined in
Differentiating “good–governance” from eGovernment and related terms*
ICT for good governance |
We use the term “ICTs for good governance” for interventions that involve ICTs, that are aligned with Sustainable Development Goal 16’s call for more transparent, accountable and participatory institutions [ |
eGovernment |
The term eGovernment refers broadly to the digitization of government services, often with a technical orientation toward improving efficiency or quality of services rather than the responsible exercise of power [ |
Governance of eHealth / Health Information Governance |
This literature has its origins in the large–scale implementation of information systems in health care, more recently including the use of mHealth and personal digital health devices. The storage, use and sharing of personal data in these new environments raises risks for information security and privacy, which have technological, legal/regulatory and ethical/societal implications. The word governance is often used to describe the policies and processes of oversight required to ensure the security and trustworthiness of such systems. It may also be used to refer to the management structures involved in collective oversight of eHealth initiatives. |
Governance of health systems through information is another theme in this literature, concerning the best use of data for supporting health care planning, coordination, quality improvement and evaluation, in common with the “Learning Health Systems” concept [ |
|
Clinical governance |
This term underscores continuous improvement of health care service quality [ |
Participatory governance |
This approach to governance emphasizes the strengthening of citizen voices, and particularly those of marginalized groups, in decision–making processes. Processes of deliberation, consultation and mobilization are particularly relevant [ |
Global governance |
This literature takes a macro perspective in studying worldwide governance of contemporary health issues. For instance, it is concerned with the role of international organizations in assisting countries to manage cross–border risks to public health security and support improvement of health outcomes [ |
Recent work in this global governance vein has addressed the challenge of achieving the goal of “health for all by the year 2000” in a free market economy [ |
ICT – Information and communication technologies, NGO – non-governmental organization
*Includes terms most closely related to the review topic and not others such as corporate governance, which concerns companies.
While relevant reviews exist in the contexts of sustainable development [
We undertook a phased scoping review including a landscape scan of implementation activities and a systematic keyword search of academic databases, guided by interviews with experts and practitioners in the field and an emergent theoretical framework. The scoping review methodology is increasingly used for mapping areas that are nascent or widely scattered [
Differences between comprehensive systematic reviews and scoping reviews*
Comprehensive Systematic Review | Scoping Review |
---|---|
Focused research question with narrow parameters |
Research question(s) often broad |
Inclusion/exclusion defined at outset |
Inclusion/exclusion developed post hoc |
Study quality filters applied |
Study quality not an initial priority |
Detailed data extraction |
May or may not involve data extraction |
Quantitative synthesis often performed |
Synthesis more likely to be qualitative/thematic |
Formally assess the quality of studies and generate a conclusion relating to focused research question | Used to map the landscape of peer–reviewed research and gray literature, identify gaps and opportunities |
*Based on a Cochrane update by Armstrong et al [
As outlined in
1. Refine research questions by reviewing the literature on relevant theoretical concepts
2. Undertake landscape scan of implementation activity: Identify key actors, project reports and gray literature relevant to digital technology and some aspect of good governance
3. Based on 1 and 2, define a strategy for systematically searching databases of peer–reviewed research
4. Apply agreed inclusion and exclusion criteria to select relevant studies
5. Converge results of database searches with products of snowball sampling from landscape scan
6. Chart and summarize the data
7. Consult with key experts to elaborate concepts and identify other research
8. Collate, summarize and report the results
The project began with a broad remit to review the evidence on innovative uses of mobile technology for strengthening “leadership, management and governance” in the health sectors of low– and middle–income countries in line with the topic areas of the funding scheme. In order to better refine the scope and focus, and avoid duplication, we began by examining existing reviews and commentary in the field, to differentiate the above three sub–topics and determine where the important knowledge gaps lie. This revealed an important gap in the literature concerning uses of digital technology for health sector governance, in contrast to a more extensive literature related to health care management and leadership issues, specifically the “good governance” agenda described in our introduction and in
Based on the above, and informal discussions with experts known to our team, we determined that ICT for health governance is an active area of applied activity, although somewhat under–researched. For this reason, we began by seeking case reports to better understand the nature of projects in this area, beginning with those we were familiar with and snowballing via web links, tracing the work of key organizations and funding streams, and undertaking targeted keyword searches in Google and Google Scholar. Case reports included “grey literature” such as project reports, compendia of mHealth/eHealth initiatives, and websites and blog posts describing active or completed projects. Searches at this early stage were conducted in English, Spanish and Portuguese; since members of the team are fluent in these languages. From an initially large and diffuse set of results we identified 22 case reports that reflected the review’s iteratively refined focus on good governance, rather than management or leadership. We also developed a list of key actors who surfaced repeatedly in relevant case reports, including funders (eg, US government, Swedish government), research organizations (eg, the Anti–Corruption Resource Centre, Transparency International) and technology organizations (eg, Ushahidi) [
Based on the initial concept mapping exercise and landscape scan, we defined a strategy for systematically searching for articles published in English and indexed in PubMed (for medical literature) or Web of Science (for interdisciplinary literature). Searches included combinations of the following terms: “governance,” “transparency,” “accountability,” “participation,” “participatory,” “stakeholder engagement,” “corruption,” “absenteeism,” “mHealth,” “eHealth”, “mobile phone”, “social media” and “digital.” Further articles were identified by examining reference lists and through key informant interviews.
To be eligible for inclusion articles had to describe
PRISMA flowchart illustrating the search process.
Due to resource constraints, articles that could not be accessed through the University of Cambridge or University of Edinburgh e–libraries were excluded. The remaining articles were downloaded for full review. In keeping with standard scoping review frameworks, we charted these studies according to key themes rather than performing full data extraction. We also followed Levac et al.’s [
Author(s), year of publication, study location
Study type/methodology
Problem(s) the program aimed to address
Technology used
Intervention use cases (eg, data collection with mobile apps, interactive digital mapping) and categories (eg, information gathering, mobilization).
To validate and develop our emerging insights, we posted questions to relevant ICT and global health–oriented email lists and online forums, including GHDonline, the mHealth Working Group listserv, and several LinkedIn groups. Through these posts we identified a number of additional gray literature reports and peer–reviewed articles. Key respondent interviews were also undertaken as a means of identifying additional unpublished work, testing emergent themes, informing iterative improvements to the analysis, and supporting interpretation with reference to “real world” challenges. Interview participants were 10 purposively sampled practitioners and researchers affiliated with key organizations or technology projects that emerged repeatedly in the searches, including men and women with work experience in Africa, Asia and Latin America. Interviews were informal and unstructured, lasting for approximately 45 minutes each.
PubMed and Web of Science searches yielded 1492 results, of which nine met all the inclusion criteria (n = 9). Expert interviews, social media recommendations, Google searches and analyses of websites and reference lists yielded 25 additional papers, including peer–reviewed articles (n = 8), and technical reports/gray literature (n = 17). In total thirty–four published research articles (n = 17) and reports (n = 17) were included (Appendices S1 and S2 in
Peer–reviewed evaluative research was sparse relative to other article types. The majority of included articles were identified through iterative and adaptive online searches (n = 25) rather than using keywords to systematically search academic databases (n = 9). This reflects the fact that academic articles used different terminologies and came from disparate communities of practice, including political science, sociology and medicine, confirming the appropriateness of our iterative scoping methodology. The technical reports came from WHO, the World Bank, or non–governmental organizations. Most of the peer–reviewed articles and technical reports included conceptual frameworks or descriptive case examples, rather than evaluative research.
Our analysis revealed 15 distinct ways of using ICTs as components of health governance interventions, or use cases. We grouped these into four conceptual categories: 1) gathering and verifying information on health services to improve transparency and auditability, 2) aggregating and visualizing data to aid communication and decision making, 3) mobilizing citizens in reporting poor practices to improve accountability and quality, and 4) automating and auditing processes to address fraud or similar inappropriate practices.
Information and communication technologies (ICTs) used for health governance interventions.
Routine data collection is one of the more widely discussed use cases in the mHealth literature; it is well established that using mobile devices can improve data timeliness and quality [
Other information gathering approaches involve
While data gathered digitally may simply be summarized in written reports and discussed in face–to–face meetings, we identified a second category of use cases related to
A number of the articles and interventions we identified involved a
Some digital mobilization efforts unfold primarily online; for example through social media and blogging, eg, [
Finally,
Digitizing processes can also increase auditability. For example, doubts regarding whether community health workers actually visit the homes of remote patients in their care may be addressed using biometric fingerprint technology to verify each patient visit [
While a growing number of anecdotal reports suggest that digital interventions for good health sector governance hold promise, the relevant evidence is undeniably mixed. For every success, there have been outright failures, as is the case with conventional good governance interventions (for which there are more randomized trials) [
Our analysis revealed fifteen unique use cases of ICT for good governance, clustering into four conceptual categories associated with better information for transparency, usable data for decision making, citizen mobilization for accountability and process automation for fraud prevention. While most of these use cases targeted government–sponsored services, some extended to the private sector, such as those aimed at combatting drug counterfeiting. Since the private health care sector is dominant in many low– and middle–income countries we anticipate seeing more ICT for good–governance focused on these settings in the future, mindful of the role of government in ensuring that these are effectively regulated.
It should be noted that, while we organized our findings around a collection of generic digital tools, in practice there is a tendency to mix and match two or more of these as components of integrated interventions that enable governance processes. Such integrated governance interventions aim to strengthen citizen–government “feedback loops” [
Factors limiting the effectiveness of digital good governance inventions in developing countries include lower rates of Internet access and mobile phone ownership among women and vulnerable groups [
Finally, the preponderance of reports and expert interviews indicated that digital good governance interventions in health care are deeply complex. Their outcomes hinge on distinctive political factors in addition to the myriad organizational and sociotechnical dynamics that shape digital health innovation generally [
In keeping with our research aims and with methodological guidance for scoping reviews [
Recent years have seen a rapid growth in the number and scale of ICT for health governance projects in LMICs. This trend seems likely to continue, with advances in digital infrastructure and Sustainable Development Goal 16 drawing further attention to strong institutions, public participation and combatting corruption [
Among the numerous reports discussing ICTs and good governance that we examined, we observed a tendency to emphasize data or transparency alone, with the implicit assumption that improvements in the quality or equity of health services would inevitably follow. However, the evidence suggests that the link between ICTs, transparency and improved performance should not be taken for granted, echoing observations from our recent scoping review on the use of social media for e–government [
Further research is required to strengthen the theoretical models underpinning these approaches and articulate their pathways to impact, while empirical studies are needed to evaluate their outcomes and understand factors mediating their adoption or effectiveness. Human–centered and participatory approaches to intervention design also merit greater attention, not only as a practical means of dealing with local complexities, but also for their links with participatory approaches to governance.
To our knowledge, this is the first formal scoping review to have examined the literature on ICT for good governance interventions in the context of LMIC health care systems. These interventions show great promise for improving transparency, accountability and public participation, thereby facilitating ethical, responsible and equitable health care. However, existing evidence of their use and effectiveness is mixed and successes appear highly context–dependent. As well as adding to the wider multi–sector literature on this topic, we hope our observations provide useful insights for policymakers, practitioners, developers and sponsors considering new projects in this area.
We thank the international experts and practitioners who contributed their time and thoughts towards our landscape scanning exercise.